Update On DCB Who Had A Seizure-Confused About DCM

[melilley]

Makes me wonder.
Her older ds is now somewhere getting tested for something. I swear it's never ending for these kids. You would think that the doctor's would catch on...or maybe they do have everything dcm says, but I doubt it.

[Papa]

Confused about DCM

This does sound a little like Munch...syndrome but if others have seen the true symptoms or problems then she seems like a anxious nervous freaking out mom. I guess it is better to be safe then sorry if even you or others have seen the seizures happen. Our granddaughter had a stroke when she was born and developed seizures later on. we would see maybe 20 or so jerks throughout the day, mostly when waking up. She also would have "staring" episodes which were also seizures. when she went in for a few days to get her brain hooked to monitors, we found out she was having an average of 300 a day! we just couldn't see them all. Meds could not control them. Now she is seizure free after the stroke area of her brain was removed.
I feel that it is better to check things out, because I have a DCM that almost never cares about anything I bring up to her. I guess everyone has different levels of concern.

[Unregistered]

Maunchausen by proxy

My grandmother was a hypocondriac. I have worked in a hospital were there was a mom that nurses said had that and she was monitored.

Now here is the thing I bet a lot of people might have thought or think I am that kind of mom.
I have a child with epilepsy and until others see it full blown they would not understand. It took a long time to diagnose and they thought he was having febrile seizures too. The first EEG showed nothing but two years later he showed generalized activity in his brain indicitive of epilepsy. So give it some time