Tweet
I have a DCB who has some major sensory processing issues. I have been expressing my concern with DCM for about 9 months now, and he has gotten worse and worse during this time. I'm not going to give too many specifics; but it is affecting his eating to the point where he has lost a lot of weight & his Dr is very concerned and has given orders to be on a Pediasure diet if he doesn't eat.
Now, 3 months after giving him Pediasure if he does not eat; he literally does not eat any food at all anymore, with the exception of waffles and chicken nuggets. DCB has gained some weight because of having a full diet of Pediasure, but he is not eating food (because he refuses to). The Dr also ordered an evaluation (my understanding is that it is an SPD and autism evaluation) 3 months ago; but she was not following up with the Dr about his weight and she was not going to make the appt with the specialist to be evaluated. After expressing my deep concerns once again to DCM about a month ago, she finally made the appt for him to be evaluated! I was so happy!!
The appt is this Thursday, and DCM now tells me she does not think she is going to take him because it will cost them more than $1K out of pocket for the evaluation. She says she realizes there is a problem, but that she feels like she already knows what they will say. She hates to spend $1K to find out something she already knows. She "just wants them to tell her how to fix it." She is currently "doing internet research to figure out how to deal with his problems."
While I do understand that $1k is a lot of money to spend on a single evaluation; I am still upset because I really think this little guy needs it!! It's one step closer to helping him with his issues. She is not going to be able to help him with just internet research. She needs the help of several specialists!
I don't know what I can or should say to her at this point? I am just so upset. Any thoughts or advice on this? Thanks in advance for taking the time to read this, I know it was long!
Now, 3 months after giving him Pediasure if he does not eat; he literally does not eat any food at all anymore, with the exception of waffles and chicken nuggets. DCB has gained some weight because of having a full diet of Pediasure, but he is not eating food (because he refuses to). The Dr also ordered an evaluation (my understanding is that it is an SPD and autism evaluation) 3 months ago; but she was not following up with the Dr about his weight and she was not going to make the appt with the specialist to be evaluated. After expressing my deep concerns once again to DCM about a month ago, she finally made the appt for him to be evaluated! I was so happy!!
The appt is this Thursday, and DCM now tells me she does not think she is going to take him because it will cost them more than $1K out of pocket for the evaluation. She says she realizes there is a problem, but that she feels like she already knows what they will say. She hates to spend $1K to find out something she already knows. She "just wants them to tell her how to fix it." She is currently "doing internet research to figure out how to deal with his problems."
While I do understand that $1k is a lot of money to spend on a single evaluation; I am still upset because I really think this little guy needs it!! It's one step closer to helping him with his issues. She is not going to be able to help him with just internet research. She needs the help of several specialists!
I don't know what I can or should say to her at this point? I am just so upset. Any thoughts or advice on this? Thanks in advance for taking the time to read this, I know it was long!
Comment