Cystic Fibrosis and Feeding

[Kelly]

I just started a 14-month-old who has cystic fibrosis. He has to take an enzyme capsule with every meal and snack, which is no problem. His mom says he has no restrictions as far as food. Since he is the only child I have here for meals and since I couldn't get out to buy groceries before he started, I asked his mom to bring food till I could get some. She brought jars of baby food, "puffs", animal crackers and milk (he's still on bottles.) Also a few raw carrots and grapes to cut up for him.

From the info I've looked up, kids with CF need more calories than other kids their age. I would like to start transitioning him to regular food but worry about him not getting enough calories. Should I maybe try starting each meal with "real" food, then follow up with baby food? And what about weaning from a bottle to sippy cup?

Does anyone else have experience with kids with CF and/or advice on how to make this transition?

[youretooloud]

The kids I've had with CF had to keep eating the jar food (even as preschoolers) to mix the enzymes into. I would mix about half a jar or less with the capsule.

But, they were all eating regular table food way before 14 months. So, I have no idea why he'd still be eating baby food it it isn't for mixing the meds in.

[Kelly]

His enzymes just have to be sprinkled on a spoonful of applesause so I don't think that's why he's still on baby food. I get the feeling it's more for his mom's convenience.