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I hope it is ok to post this, if not PLEASE let me know. I don't normally post things such as this because there is so much spam out nowadays, and if you don't know the person you just don't usually follow the story...but I'm doing this for my 16 year old daughter and for awareness on her rare condition. She was born with a rare facial lymphatic malformation, you can follow the story and read about it on her givefoward page shown in the photo below, I explain her journey in detail. Really looking for more facebook likes on her page as well :-) to help spread her story. You can find her on facebook at Lexi's Miracle. If you can, please like her page :-) and help us share it to help spread her story.
It has been a long road for her, to wrap it up in a nutshell, she was born with this facial malformation which caused her dangerous infections, she has lost 90% of vision in her right eye as it is underdeveloped from her malformation, and she has an underdeveloped cheek bone. All her life the Drs. in our area said it could not be surgically removed. Last June we found a Dr. in NYC who specializes in her rare condition and can remove them. She has had 5 procedures (2 major surgeries) in the past 5 months. We see some amazing progress! The healing looks rough but great things are happening for her. She has several more surgeries to go...all out of network and out of our area. Thank you if you can help spread her facebook page for us. We know GOD is on our side with her journey.
It has been a long road for her, to wrap it up in a nutshell, she was born with this facial malformation which caused her dangerous infections, she has lost 90% of vision in her right eye as it is underdeveloped from her malformation, and she has an underdeveloped cheek bone. All her life the Drs. in our area said it could not be surgically removed. Last June we found a Dr. in NYC who specializes in her rare condition and can remove them. She has had 5 procedures (2 major surgeries) in the past 5 months. We see some amazing progress! The healing looks rough but great things are happening for her. She has several more surgeries to go...all out of network and out of our area. Thank you if you can help spread her facebook page for us. We know GOD is on our side with her journey.
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